Case Studies

We give below some real life case studies of patients from the Dallas area to illustrate the needs that MS Care Foundation is attempting to address. Only the names have been changed-the tragic stories are true.

There are many patients who have had MS for years without the benefit of preventative medications. They have already developed disability and now need symptomatic treatment. So how do we help them when some of the very things that could help them are beyond their means, and the insurance companies and Medicare don't recognize as important enough to warrant funding? These are the patients that we need to help.



Andy has weakness in one of his legs and can't walk distances. He needs a brace to help him but his insurance says it isn't medically necessary. So he can't walk and stays isolated, unable to get his groceries or go see his friends.


Susan has become disabled recently and can't do her job any more. She has trouble writing and has memory problems because of her MS. She is struggling to sort through the paperwork needed for disability assistance. She's confused by the paperwork and all the different government agencies she has to deal with and she doesn't have access to a social worker who can help sort things out for her. So she continues to be unable to work and remains without a source of income.


Brian has had MS for a while and uses a walker. He's an artist and though he hasn't been able to work full time because of his MS, he continues to work part time to provide a source of income to pay for his medications and to give some purpose to his life. His workshop is on the second floor and he struggles up and down the stairs. Sometimes he doesn't quite make it and falls down the stairs. He needs an electric lift chair but doesn't have the resources to buy one. So he continues to struggle and continues to fall.


Amy has longstanding MS and is in a wheelchair. She only has partial use of one hand. She is not improving and because of that Medicare will not pay for aides to come to her house to help her get in and out of bed. She pays an aide 3 days a week and lies in bed the other 4 days, unable to roll over, pull herself up or feed herself. Her 88-year-old mother doesn't have the strength to help her so Amy stays in bed and continues to get weaker and not improving. A self-fulfilling prophecy.

These are some of the people we know about. There are many others. They need little things, simple things, things that can restore quality, hope and dignity to their lives. Hopefully, we can make a difference to their lives.


top of page

    

Copyright © 2001 MS Care Foundation | Privacy Policy